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Family & wellbeing

Siblings, caregiver wellbeing, and talking to family.

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What I've learned from my autistic brothers — Faith Jegede Cole

TED — Faith Jegede Cole

How autism freed me to be myself — Rosie King

TED — Rosie King

From the glossary

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Caregiver burnout

The exhaustion that builds up from the constant emotional, physical, and mental load of caregiving — especially without support. Burnout is not a failure; it is a sign the system around the caregiver needs more padding. Rest, peer support, and asking for help are protective.

Sibling support

The brothers and sisters of autistic children often quietly absorb a lot. Simple, named time with each sibling, age-appropriate explanations, and the message "your feelings are okay too" go a long way. Peer groups for siblings exist in some communities.

Parent coaching

A therapy model where the clinician works mainly with the parent — teaching strategies, watching short interactions, and giving feedback — rather than directly with the child. Parent coaching can be a powerful, sustainable form of early support, especially when therapy hours with a child are limited.

Peer support

Connection with other parents who have walked similar paths. Peer support can be a local group, an online community, or a one-to-one mentor. The point is shared understanding without having to explain — peer support reduces isolation and often surfaces practical tips that professionals do not have.

Grandparents and autism

Grandparents often bring decades of warmth and worry. Some grandparents take a while to come around to the diagnosis; some are the first to spot signs. Sharing what you have learned in small, concrete pieces, and giving them ways to help, usually lands better than a big sit-down.

Neurodiversity-affirming care

A stance among many therapists, educators, and clinicians: the goal of support is not to make an autistic child appear less autistic, but to help them thrive as themselves. Neurodiversity-affirming care prioritises self-advocacy, sensory comfort, and respect for autistic communication styles.

Common questions

Will my diary be private?
Yes. Diary entries are private to you and the Care Circle members you choose to invite. They are encrypted at rest. Educational content is public; your personal data is not.
How do I talk to family about a diagnosis?
Start with what you have noticed, not the label — "I have been thinking about how he reacts to loud places" lands more gently than "He might be autistic." Give people time. Be ready for unhelpful comments and have a quiet boundary ready ("we are working with a doctor, and I will share more when we know more"). You do not owe anyone the whole story right away.
How do I tell my child they are autistic?
Sooner and more matter-of-factly than feels natural. Autistic children almost always do better knowing — it gives them words for what they have always felt. You do not need a single big conversation; weave it in across many small ones. "Your brain works a bit differently — that is why X is easy for you and Y is hard." Many autistic adults wish they had been told earlier, in plain words, without sadness around the diagnosis.
My partner and I disagree about whether to seek assessment. What can we do?
This is one of the hardest moments for many couples. Some things that help: separate the questions of "is something different" from "what should we do about it" — agreeing on the first is easier. Watch a credible video or read a short article together rather than relying on memory of arguments. Ask the paediatrician for a consultation visit without your child first. And give it time; many partners come around when they see their child observed by a clinician.